As a rare disease patient, Candace has navigated multifaceted challenges in a variety of healthcare settings. She understands the patient odyssey on a deeply personal level, adding value and a perspective to projects that need to deliver solid outcomes for disease communities.
Candace has practiced corporate and healthcare law, helping clients solve complex problems and establish systems to help their ideas grow. In addition, she worked with several non-profit advocacy groups on topics ranging from patient data collection/registries, setting up Centers of Excellence to improve research on rare conditions, and developing sustainable programming to address the unique needs of small patient communities. She also works closely with members of Congress on federal healthcare legislation, to improve access to therapies for patients like herself.